BCF Blog

Mission
The Brady Colbert Foundation is a non-profit organization dedicated to helping families cope with diagnosis, care taking, and death of a terminally ill child by providing a variety of resources in an effort to ease the emotional stress and frustration of life's transitions.

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The Brady Colbert Foundation

Our blog has moved. For all of our recent posts please visit http://bradycolbertfoundation.blogspot.com/

Monday, December 15, 2008

Our journey continues... Ken and I are very happy to announce that we are going to have another baby boy! We had a CVS test done about 4 weeks ago and the results came back normal. That means, with 97% accuracy, this baby does not have Zellweger Syndrome like our 2nd son, Brady. We were so thankful for this early Christmas gift. In addition to the journey in our personal lives, we continue on this journey of running the foundation. We have "met" some wonderful people who have children diagnosed with peroxisomal disorders similar to what Brady had. One family we met that lives in Nebraska was recently hospitalized because their child was diagnosed with Leukemia, on top of his peroxisomal disorder. We were able to send that family some hospital cafeteria gift cards and a special "get well" gift for their child.

We've also "met" a family living in Florida through the peroxisomal disorders group. We are working to send that family to an important conference in Chicago so that they may learn about new medical research and care options for their young son. As excited as we were to meet these people who know what it was like to have a child with this disorder, there was a small part of us that was very sad to know that there are others who have to go through this ordeal. It encourages us to continue to help in any way we can.

As the holiday season approaches, we were able to send gifts to a local family with a young daughter with an inoperable brain tumor. While we know that gifts cannot even come close to "fixing" their pain, frustration, stress, and worries; we hope they bring a smile to their faces and help to lessen the load a bit.

Happy Holidays and a special thank you to all who have contributed to our foundation this year. You too have helped these families! We couldn't do it without you!

Sunday, September 14, 2008

We are so excited for our first golf tournament in Massachusetts! Tomorrow is the big day and we're all ready. Aside from being extremely busy planning events, Ken and I have had the opportunity to meet with our local Avow Hospice organization to see how we could work together to help families. Our two meetings with them were great because we learned about some new books that would be helpful for siblings and discussed what our hopes and dreams are for the future of the foundation. The were well received and we were encouraged to keep up our hard work!

Sunday, June 22, 2008

Our visit to Boston was very constructive. We met with the social workers and our nurse, Gaby, from the NICU at Brigham & Women's hospital. We were able to hand deliver journals and pens for them to give out to deserving families. We shared our ideas of how we would like to help families and heard from them other ideas of what families need. We all walked away from our meeting feeling excited about what we were doing.

We also met with the board members living in Massachusetts to discuss the upcoming golf tournament they will be hosting in September. For most of the people on the planning committee, this is the first tournament that they have ever worked on. Everyone involved has shown great commitment to the project and because of this it is working out to be a great event!

Wednesday, June 4, 2008
The 2008 BS Open was a huge success. After it was all said and done we raised just over $7,000! A big "Thank You!" to all who helped and played in that tournament. As most of you know, Ken and I are school teachers by day. We are excited that the school year is just about to come to a close so we can work on some exciting things for the foundation this summer. One of our first tasks will be to meet with Brigham & Women NICU social workers to discuss our ideas to help families in need. Ken and I are both looking forward to sharing our ideas and hearing some new ones from them. After our meetings, things should be set in stone for us to begin providing resources to some of the families in the NICU.

We plan on meeting with doctors, social workers, and psychologists in the Naples area so that word starts to spread of our foundation and the help we can provide to families. Our 2008 Baby Brady Tournament is also requiring a bit of our attention. We have already been meeting with some of our major sponsors to secure donations for our fabulous raffle prizes. Last year we gave away over $20,000 worth of merchandise, so we have our work cut out for us. With all these plans and hopefully a bit of relaxation, the summer should prove to be a very productive time for the Brady Colbert Foundation.